Dr. Ellie Kazemi is the Chief Science Officer at Behavioral Health Center of Excellence (BHCOE), an accrediting organization focused on improving the quality of behavior analytic services. She is also a professor at CSUN, where she founded the M.S. in Applied Behavior Analysis (ABA) program. Dr. Kazemi joins us to share about the accreditation process and the importance of assessments and measuring outcomes in the field of ABA. As Dr. Kazemi discusses the value of connecting the perspectives of the families and the clients, and shares, “To measure outcomes you should see progress from different perspectives”.
An Honest Look at the Full Experience of Autism with Russell Lehmann
Motivational Speaker and Poet Russell Lehmann joins us to share his perspectives on autism and the human condition. Having spent most of his life in isolation, Russell has found his voice and independence in recent years. His passion for erasing stigma and stereotypes about autism is shared through his moving, spoken-word poetry. As Russell shares, “I like to say you hold up a mirror to anybody, and that’s what autism looks like. I don’t expect anyone to be able to tell that I have autism just by looking at me. But hopefully, someday they won’t be as shocked to find out.”
Creating a Successful Holiday for Children with Autism
All Autism Talk hosts Kathrine Johnson and Richie Ploesch, sit down to discuss strategies and tips to support a happy, safe, and fun holiday experience for children with autism. As Katherine shared, “When kids know what to expect, it can really help them regulate… and leaving space to let them have a choice and downtime can really help”.
For more helpful family tips all year round visit:
Nobody’s Normal: How Culture Created the Stigma of Mental Illness
Roy Richard Grinker is a Professor of Anthropology and International Affairs at George Washington University and author. He joins us to share insights from his latest book, Nobody’s Normal: How Culture Created the Stigma of Mental Illness. In this discussion, we explore how various stigmas around diagnosis are formed – and can be dismantled. As Richard shares, ”Look at the history of autism, when mothers were blamed and autism was only looked at in negative terms… We don’t end up in a very good situation. I’m trying to point this stuff out so people can realize we do have the power to change.”
TSC: A Rare Genetic Disease with a 50% Autism Diagnosis
Kari Luther Rosbeck, President & CEO, TSC Alliance, and Steven L. Roberds, PhD, Chief Scientific Officer, TSC Alliance join us for a discussion about Tuberous Sclerosis Complex (TSCA) a rare genetic disorder. This is an incredibly educational conversation on how this disease is identified and treated. About 50% of those diagnosed with TSC, will also have a diagnosis of autism. Even if your child is not at risk for TSC, the thoughtful approach to treatment and resources can be valuable for all parents. As Kari shared, “When people are ready, they need to know; what are the right questions to ask, what about genetic testing, what about medication, and how does that whole system work?”
Learn more about TSC Alliance by visiting tscalliance.org
Interested in ABA therapy for your child? Contact us https://lrnbvr.com/contact
All Autism Talk (allautismtalk.com) is sponsored by LEARN Behavioral (learnbehavioral.com)
Dr. Temple Grandin and Dr. Debra Moore – Navigating Autism
Dr. Temple Grandin returns to the podcast to discuss her latest book, Navigating Autism, which is a collaboration with psychologist Debra Moore, who has done extensive work with children, teens, and adults on the autism spectrum. This episode highlights Dr. Grandin’s powerful personal insights and wisdom with practical support and help from Dr. Moore. In this lively conversation, Drs. Grandin and Moore delve into a number of topics, from how to teach your child basic skills to what you can do to identify and stretch your child’s strengths and interests. The authors also share their belief that many educators, parents, and caregivers underestimate their kids, and they offer advice on what parents can do to help their child reach their highest potential.
Addressing the Cultural Needs of Families with Autism
Corina Jimenez-Gomez, faculty at Auburn University, and Lauren Beaulieu a behavior analyst for 20 years join us to discuss the importance of culturally responsive services in ABA. Along with their extensive work educating others in this area, they each bring their personal experiences to this important conversation. Corina is a mother and Venezuelan native now living in Alabama. Lauren also shares insights she has gained from her marriage to an Italian immigrant. There is so much rich information about how professionals can take responsibility and action to better serve families. One bit of advice offered to those just beginning their careers was, “Do a self-assessment and then get the training and focus on those soft skills that we tend to ignore in masters programs. Focus on relationship building. You may have to step outside your program to get that.”
Female Life on the Spectrum – Insights from Jennifer Cook
Jennifer Cook was diagnosed on the autism spectrum at the age of 35 and is raising three children on the spectrum. She is the author of seven bestselling, award-winning books. This lively conversation had our host, Katherine Johnson laughing and crying. Jennifer provides perspective on why diagnosis has been widely missed in girls and women and promotes her philosophy of helping others, “Move from feeling like a mistake to feeling like a miracle”.
Holly Lechniak Licensed Clinical Social Worker and Outreach Director for the AARTS (Autism Assessment, Research, Treatment, and Services) Center at Rush University Medical Center, joins us to share about the work of SPARK. This national study is working towards accelerating research, as well as our understanding of autism. Holly shares, “Autism, as compared to other fields, is still relatively new in the area of research. There is still much to learn in order to continue to improve treatment, care, and quality of life for individuals across the lifespan.”
Autism Today: A Look at How Far We Have Come and What is Still Needed
Dr. Fred Volkmar, a professor at Yale University with over 40 years in the field of autism-related studies, joins us to provide perspective on how far we have come in the diagnosis, research, and services for individuals with autism. With all the gains, there is still a great need for more research. As Dr. Volkmar put it, “I think until we get more parents pushing for work on adults, we’re just not going to see it. You have to put your money where your mouth is and I think the federal government needs to fund more research on adults with autism”. Dr. Volkmar also discusses his latest book written with his wife, Dorothy Goodwin which aims to provide parents with practical help for their family.